Maddie Austin

Meet Maddie! She was born via C-section and was quickly rushed to the NICU due to breathing difficulties. An MRI led to her being diagnosed with Neuronal Migration Disorder caused by the abnormal migration of neurons in the developing brain and nervous system. She was in the NICU for 32 days then sent home, but came back due to high CO2 levels. A tracheotomy was performed and it was discovered that she also had Bronchial Tracheal Malacia. At 2 years old, doctors found out that she also has Ehlers Danlos Syndrome, affecting her skin, joints, and blood vessels. Maddie loves her St. John’s team and her favorite dance is the hokey pokey.

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